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Archive for August 27th, 2015


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PERIPHERAL NEUROPATHY

I have Hereditary Peripheral Neuropathy, complicated by Type II Diabetes. Neuropathy comes in many forms, and causes, it can be caused by an illness, reaction to a drug, or complications from surgery. Diabetes has the worst effect on it.

Here is what it has done to me, I have almost no feeling any longer in my feet, it is slowly traveling up my legs, because of the damage to the peripheral nerves, it can be extremely painful at times, the worst is at night. It has affected my balance, my ability to walk long distance, I can’t do anything for long periods, walking, sitting, standing, laying down, reclining, and hiking is out of the question now. The pain is constant, it just varies in the degrees of how bad it is, but I am no longer pain free. I get uncontrollable leg spasms, and sometimes they are 10 times more painful than your average leg cramp (charlie horse).

One of the bad things about having this, is I look fine, it is so hurtful to get the dirty looks from people when I park in disabled parking, even though I do have a permit.

There is no cure for this, there are some drugs you can take, but to me the bad side effects, outweigh the benefits. Some things help like Alpha Lapoic Acid, an over the counter vitamin. I have made a personal decision not to take pain pills, too many side effects, and I do not want to be a zombie, or become addicted to them. Marijuana helps, but is still illegal in Utah. CBD hemp oil helps too, but it is expensive, and can only be ordered online.

This is something I have to live with the rest of my life. I am now disabled by my neuropathy; I worked very hard all my life, full time from the age of 16 until 2011, for 48 years. I paid into the government all that time, I now collect SSDI, believe me, I would much rather work than be on disability, besides that the pay is better.

So please understand when I am having a bad day, or I have to cancel plans at the last minute, it is not that I no longer care, it is just the way it is for me now. Don’t offer me remedies, believe me, I have tried them all. All the sold called Neuropathy centers are quacks, or just want to study a new drug on you that doesn’t work.

If they ever find a cure, I will be the first in line. Thanks for your understanding.

Peripheral nerve cells

 

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